Mutation and devastation

Today we learned that Judah’s Low Grade JPA tumor has mutated into a very aggressive High Grade Glioblastoma. It is technically a Diffuse Intrinsic Midline Glioma (Dimg). There is no cure. 

Judah looks great. You’d never know he had a cancer rapidly dividing in his brain stem. It is a mercy that he is in such great shape. Because of this, he will be able to start radiation this coming Tuesday. It will be everyday, 5 days a week, for 6 weeks here at St. Jude. It is easier on the body than chemo. And it will help Judah feel better for a while. Unfortunately, the radiation is only a stop gap. Once Judah’s tumor starts growing again, there are no options. We will do our best, with the help of palliative drs, to make him as pain free and comfortable as possible. 

And in the meantime, we will soak up every second of Judah’s good time. We will take trips and laugh and burn his everything into our memory. We will love each other with all we have.

Thank you for your prayers and encouragements. Thank you for sticking in this with us, even though it’s ugly and hard. We are broken. Devastated. There will be no way to mend us without Judah.

I will continue to post here with updates. The majority of the Thackerpack’s memory making will be documented on the blog and instagram (thackerpack.com and IG: thackerpack)