So this evenings neuro exam was so encouraging. They asked him yes or no questions (did he want his Bubby and blanket, was his head hurting, did he feel better after the new medicine, was he ready for nigh nigh) and he shook his head or nodded. Then they asked him to wiggle his toes, give a thumbs up and he did!!!
He is resting now and will continue to do so as we wait for the swelling to go down so he can get off the ventilator.
We are so thankful that our sweet Jesus loves him so!
Here are some specific ways you can be praying for Judah during surgery tomorrow (Thursday 7/11):
Judah goes into surgery clam and unafraid.
That his happy and hopeful spirit is protected in the face of pain and changes he can’t understand.
Pray against the depression he’s been suffering since he’s been stuck in a hospital bed for a week, and probably another week to come.
Surgeon and surgical team are well rested, alert, surrounded and empowered by the Holy Spirit.
Anesthesia is precise and effective.
No long term residual side-effects to speech, breathing, swallowing mechanisms.
No cognitive damage.
No motor skills damage.
Majority of tumor comes out easily and without damaging surrounding tissue.
That the removal of tumor relieves Judah’s symptoms – apnea, nostagmus, facial paralysis, balance and coordination issues.
Swelling goes down quickly and the brain resumes normal flow of spinal fluid.
The tumor be very low grade/benign.
Judah resumes normal, unaided breathing quickly and maintains full control of his airway.
That the recovery team and nurses are both wise and kind.
As little pain as possible during recovery.
That the 5-8 hrs of waiting for Judah to come out of surgery be filled with a peace that only the Holy Spirit can give. That we will not be anxious or afraid but trust in God’s goodness.
For Wendi and I we’d ask prayer for strength for the days to come, hope in a glorious outcome, and faith that our sweet Jesus will provide what we need to get through this.
Judah’s Life verse and Matthew and I picked for him when he was born is
Because he holds fast to me in love, I will deliver him;
I will protect him because he knows my name.
When he calls to me, I will answer him;
I will be with him in trouble;
I will rescue him and honor him.
With long life I will satisfy him and show him my salvation.
Below you will find a collection of updates and prayers from the day of Judah’s partial brain tumor resection:
They moved the time up a little, now at 9:30 CDT. While the surgeon’s part will only be about 5-6 hours, the prep and finish up will mean he’s gone from us for 7-8 hours.
We just got down to surgery holding. He says he’s so hungry. Then he told us what he wants us to order him when the nurse says he can eat. Bacon, strawberry yogurt, a banana, and a carton of milk. So sweet. He was so sad when we told him we couldn’t go with him into surgery. He said, I want you to be with me when they take the ball out. But our Sweet Jesus is going before us because he just fell asleep!
The nurses just came and wheeled him back to surgery. Surgery won’t actually start for an hr or so as they prep him. He stayed asleep for theist part, waking only when we kissed him and told him we loved him. Our God hears our prayers for peace and no fear for our little boy.
Started the surgery at 10:18am
Just got the call that they are opening his head now.
Just got an update. Vitals are good, working on the tumor. Everything is going fine.
Dr. Wellons just came out and told us he’s out of surgery! He said he did really well. They got most of the tumor in the 4 ventricle but were unable to get any of the tumor in/above he brain stem or spine. When they tried to get the tumor that was growing from the brain stem the 9 nerve reacted (swallowing) and the 12 nerve reacted (tongue). Shortly after, Judah’s heart rate jumped. That was their sign to stop.
Dr. Wellons said his goal was to ‘debulk’ the tumor, get the tissue to pathology, create paths for the spinal fluid, and cause minimal disruption to surrounding tissue. He said he met all those goals barring the part of the tumor growing out of the brain stem.
We are elated that this part of the journey is over and praising God for his steadfast love and faithfulness. He has shorn us up from the beginning and will continue to do so.
Please continue to pray:
That there are no residual side effects from the surgery
That when they wake him in a little bit, he will be able to move all of himself
That he will be able to control his breathing, swallowing, and speaking tomorrow
Thank you all!