Judah stops breathing and I almost have a heart attack

Judah just stopped breathing and passed out. Was out for about 30secs before he came too. Have calls into neuro surgeon and oncology. Please pray!

Well we talked to the Hem/Onc nurse and she said she would let our oncologist and neuro surgeon know and that they would probably call us to talk about it. However since his vitals were normal and his ox sats were good, they didn’t think it was emergent.
We haven’t heard from either dr yet so I’m guessing we won’t hear anything tonight. Tomorrow Judah has chemo at 9:30 so I will talk with his oncologist here and she what she thinks. Last week when his balance was off, she said if he was still off she would send us for a ct scan so we may do that tomorrow to make sure the shunt is working properly.
I have ckd his pulse ox all day and since recovering from passing out it has stayed between 92-96 so that is good. We will ck it night too.
Please be in prayer for both his breathing and overall brain safety.

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chemo side effects make keeping a full tummy hard

Well we had made it 4 wks without any day of side effects but today he came home tired and then before bed threw up. It only lasted about 5 minutes but in throw up time that’s like an hr! He recovered fast and is now eating saltines and drinking water. Pray for a calm tummy and restful sleep.

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second chemo and nausea sucks

Yesterday was Judah’s 2nd chemo. He got sick, like before, about 20 minutes in and stayed sick for around 30 minutes. He didn’t throw up though so that’s a plus. He was pretty worn out after.
Today he had his PT/OT evaluations. He got scared at first, thinking it was a “hospital” but soon had a blast playing with his new buddies Julie and Katie. He wasn’t shy at all and they got to really see his strengths and weaknesses. Like Ashley, his Speech Therapist, they agree he needs breath support and torso strengthening but he also needs fine and gross motor skills. So he will have speech 1 day a week, pt and ot will both be 2 days a week. Thankfully they were able to avoid Wednesdays and Thursdays so he will have chemo day and day after to just rest.
Next week will be very busy as he will have his first pt Monday then we head straight to Nashville for his neuro ck where they will also remove his stitches. Then his first ot is Tuesday evening. Wednesday is chemo and Friday is ot/pt again. Pray for strength and endurance for the crazy week, a calm and peaceful spirit as we go back to Vanderbilt (as Judah seems to have anxiety about hospitals now) and patience for both Judah and me as we get more accustomed to our new normal.

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first chemo side effects…already

This morning at breakfast Judah was holding his jaws while he chewed. We asked him what was wrong and he said his mouth hurt. We asked him where it hurt and held the sides of his face. His jaws.
The oncologist had told us that one of the side effects of his chemo is neuropathy in jaws, fingers/hands, and toes/feet.
Please pray specifically for this to go away and stay away. Jaw pain/neuropathy on top of nausea will make him not want to eat no matter what we give him. If his calories drop we will have to go back to a feeding tube.

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Judah’s first chemo

Judah’s first chemo is this morning. Please pray that is all goes smoothly, that he has little side effects. Pray that he isn’t scared.
He will have blood draws at 7:45 then meeting with the dr at 8:00 then chemo from 9-11.
Thanks for the prayer support! Love you all.

Judah got a little sick in the middle of the treatment but was ok by the end. They gave him zofran for nausea and we will continue that every 8hrs for the next 48 hrs. Thankfully, his immune system will not be compromised until next wks treatment but we are having to learn a lot about germs, infection, and how to protect our little family. If one of us gets sick after next week, we will have to go stay somewhere else. Gotta keep the germs away as much as possible. Investing in hand sanitizer and Clorox wipes, haha!

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