don’t stop advocating

Last Thursday was a rough day. The fever at 5am. The ER visit. The CBC normal, again. But there was a change in our visit. Matthew requested a CT and the ER Dr agreed to do it! Fortunately/Unfortunately, it was normal too. The ER released us to Clinic for chemo. The Dr had results from all the tests she ordered, and again, they were mostly within normal ranges. His results did show there was inflammation somewhere. But no clue where.

We spent the weekend relaxing and resting. We played video games, watched movies, and enjoyed some much needed snuggle time! We also started the conversation with St. Jude. We gave the ok for them to request and receive all of Judah’s medical records. Vanderbilt sent records Tuesday (faxed and mailed). ETCH hasn’t sent anything yet, but our St. Jude coordinator assured us that they are the best at getting what they need. So we are leaving it to them!

And with that ball rolling, Vanderbilt is moving in the direction of more aggressive diagnosis and hopefully, in conjunction with St.Jude and ETCH, we will get to the bottom of what is causing Judah’s fevers and headaches. We are of the opinion that the more eyes and brains looking at Judah’s records, the better! And we are so lucky to have so many Drs that care. Sometimes, it just takes a fierce advocate to get everyone on the same page and Matthew and I are happy to be that if it means Judah gets what he needs. We will keep on them. We will not stop. It is our job to fight for those that can’t fight for themselves. In our case, it’s Judah.

Who could you be fighting for today?

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